I received an email about a month ago for something that I knew I HAD to be a part of. What I was not expecting was the solidarity of my family towards my decision. It has now turned into a family event complete with a team name….
Simply Reine will be taking part in Kennedy Krieger Institute’s 11th annual ROAR FOR AUTISM 5K Run / Fun Walk on April 26, 2015. Registration fees, sponsorships and donations will support autism research and treatment programs at Kennedy Krieger Institute. We chose to do the Fun Walk so that Reine could actually take part in the event and not watch from the side lines.
In case you did not know, Kennedy Krieger is where we go to for Reine’s diagnoses and treatments. You can not research autism without finding at least one study or reference made by Kennedy Krieger or about Kennedy Krieger. They are in my opinion, they are one of the leading institutes in autism research and treatment.
They have given me guidance and recommendations for things that have helped me to begin to navigate into Reine’s world and to help her navigate into ours. I am not sure where my family would be without them. The difference I have seen in Reine in the last couple of months has been UNREAL. She is more at peace with herself and with us. Her stress and frustration levels are significantly lower than they were pre diagnosis. Don’t get me wrong, we still have our days where we feel like we are hitting our heads against a brick wall, but that is to be expected. There is a learning curve / process we are learning. But we are finally starting to understand her and her needs. I can take her into stores and places with crowds now. It is AMAZING to watch her take it all in and know that she is no longer so overstimulated that she feels the desperate need to escape. We get to watch her truly enjoy herself and take part in the world around her. I am learning her needs and what we have do to help her to navigate into our world. None of this would be happening or even possible without Kennedy Krieger Institute and their AMAZING staff.
There will be VERY few times, if ever, I will ever ask you for anything. This is one of those times. Simply Reine has set a goal of $1000 to donate to ROAR FOR AUTISM. If we reach our goal, we will set another one and do our best to achieve it.
We need your help and support.
WE CAN NOT DO THIS WITHOUT YOU.
If you want to sponsor us, donate on our behalf, support us and cheer us on, I would be forever grateful. If you are going to be in the Baltimore area and want to join Simply Reine as we do the 5K Run / Fun Walk to support ROAR FOR AUTISM we would LOVE to have you on our team.
Click the following links if you want more information….